Ethical imperatives of timely access to orphan drugs: is possible to reconcile economic incentives and patients’ health needs?

Author:

Rodriguez-Monguio R.,Spargo T.,Seoane-Vazquez E.

Publisher

Springer Science and Business Media LLC

Subject

Pharmacology (medical),Genetics(clinical),General Medicine

Reference52 articles.

1. Centers for Disease Control and Prevention. Chronic Diseases: The Leading Causes of Death and Disability in the United States. 2016. http://www.cdc.gov/chronicdisease/overview/index.htm . Accessed 14 Aug 2016.

2. National Institutes of Health. Genetic and Rare Disease Information Center. 2008. http://rarediseases.info.nih.gov . Accessed 18 Mar 2016.

3. United States Congress: Rare diseases Act of 2002. Public Law 107–280.

4. Wastfelt M, Fadeel B, Henter JI. A journey of hope: lessons learned from studies on rare diseases and orphan drugs. J Intern Med. 2006;260(1):1–10.

5. Muff-Luett M, Nester CM. The Genetics of Ultra-Rare Renal Disease. J Pediatr Genet. 2016;5(1):33–42.

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