The role of patient organizations in the rare disease ecosystem in India: an interview based study
Author:
Funder
Science and Engineering Research Board
Publisher
Springer Science and Business Media LLC
Subject
Pharmacology (medical),Genetics (clinical),General Medicine
Link
http://link.springer.com/content/pdf/10.1186/s13023-019-1093-6.pdf
Reference58 articles.
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3. Valdez R, Ouyang L, Bolen J. Public Health and Rare Diseases: Oxymoron No More. Prev Chronic Dis. 2016;13:–E05.
4. Cohen JS, Biesecker BB. Quality of life in rare genetic conditions: a systematic review of the literature. Am J Med Genet A. 2010;152A:1136–56.
5. Verma BS. Ainhum. A rare disease. Indian J Med Sci. 1967;21:123–5.
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