Author:
Zurynski Yvonne, ,Deverell Marie,Dalkeith Troy,Johnson Sandra,Christodoulou John,Leonard Helen,Elliott Elizabeth J
Funder
Australian Research Council
Publisher
Springer Science and Business Media LLC
Subject
Pharmacology (medical),Genetics (clinical),General Medicine
Reference26 articles.
1. Anderson M, Elliott EJ, Zurynski YA. Australian families living with rare disease: Experiences of diagnosis, health services use and needs for psychosocial support. Orphanet J Rare Dis. 2013;8:22.
2. Zurynski Y, Frith K, Leonard H, Elliott E. Rare childhood diseases: How should we respond? Arch Dis Child. 2008;93:1071–4.
3. Elliott EJ, Zurynski YA. Rare diseases are a ‘common’ problem for clinicians. Aust Fam Physician. 2015;44:630–3.
4. Knight AW, Senior TP. The common problem of rare disease in general practice. MJA. 2006;185:82–3.
5. European Organisation for Rare Diseases. The Voice of 12,000 Patients: Experiences and Expectations of Rare Disease Patients on Diagnosis and Care in Europe. 2009.
http://www.eurordis.org/IMG/pdf/voice_12000_patients/EURORDISCARE_FULLBOOKr.pdf
. Accessed 1 July 2016.
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