Health education to promote knowledge about sickle cell disease and newborn screening in pregnant women: a community-based pilot study using the healthy beginning initiative

Author:

Ezenwosu Osita U.,Olawepo John O.,Lacroix-Willliamson Lorraine J.,Itanyi Ijeoma U.,Ogidi Amaka,Onyeka Tonia C.,Gully Madeline,Gregory Maisha,Breeze Janis L.,Ibemere Stephanie,Idemili-Aronu Ngozi,Molnar Beth E.,Ezeanolue Echezona E.

Abstract

Abstract Background Pregnancy presents a critical period for any maternal and child health intervention that may impact the health of the newborn. With low antenatal care attendance by pregnant women in health facilities in Nigeria, community-based programs could enable increased reach for health education about sickle cell disease (SCD) and newborn screening (NBS) among pregnant women. This pilot study aimed to assess the effect of education on the knowledge about SCD and NBS among pregnant women using the Healthy Beginning Initiative, a community-based framework. Methods A pre-post study design was used to evaluate knowledge of SCD and NBS in a convenience sample of 89 consenting pregnant women from three communities. Participants were given surveys prior to and following completion of a health education session. McNemar’s test was used to compare the proportion of participants with correct responses. The level of significance was taken as p < 0.05. Results Compared to pre-test values, post-test values showed that participants understood that SCD is hereditary (93.3% vs. 69.7%), both parents must have at least one gene for someone to have SCD (98.9% vs. 77.5) and blood test is the right way to know if one has SCD (98.8% vs. 78.7%). Also, a large proportion of participants (post-test ~ 89.9%; compared to pre-test ~ 23.6%) understood that the chance of conceiving a child with SCD was 25% for a couple with the sickle cell trait (SCT). Knowledge of the possibility of diagnosing SCD shortly after birth was highly increased in the post test phase of the study when compared to the pre-test phase (93.3% vs. 43.9%, respectively). Concerning the overall knowledge scores, those with high level of knowledge significantly increase from 12.6% pretest to 87.4% posttest (p = 0.015). Conclusion The health education intervention was associated with significant improvement on almost all measures of SCD knowledge. Focused health education for pregnant women using community structures can improve knowledge of SCD and NBS.

Funder

Institute for Health Equity and Social Justice Research, Northeastern University, Boston, USA. CTAIR UNN and Healthy Sunrise Foundation, Las Vegas, USA.

Publisher

Springer Science and Business Media LLC

Reference40 articles.

1. Serjeant GR. The natural history of sickle cell disease. Cold Spring Harb Perspect Med. 2013;3(10):1–11. https://doi.org/10.1101/cshperspect.a011783.

2. World Health Organization (WHO). Fifty-Ninth World Health Assembly: Sickle-Cell Anaemia - Report by the Secretariat. 2006. https://apps.who.int/gb/archive/pdf_files/WHA59/A59_9-en.pdf.

3. Piel FB, Patil AP, Howes RE, et al. Global epidemiology of sickle haemoglobin in neonates: a contemporary geostatistical model-based map and population estimates. Lancet. 2013;381(9861):142–51. https://doi.org/10.1016/S0140-6736(12)61229-X.

4. Galadanci N, Wudil BJ, Balogun TM, et al. Current sickle cell disease management practices in Nigeria. Int Health. 2014;6(1):23–8. https://doi.org/10.1093/inthealth/iht022.

5. Adekile AD, Adeodu OO, Adegoke SA, Haemoglobinopathies. In: Azubuike JC, Nkanginieme KEO, editors. Paediatrics and Child health in a Tropical Region. 3rd ed. Lagos: Educational Printing and Publishing; 2016. pp. 1051–65.

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3