Abstract
Abstract
Background
Parents are integral in the treatment of pediatric eating disorders. The current study was conducted to further understand the barriers and facilitators that parents experience in accessing specialized, tertiary level eating disorder treatment for children and adolescents. The goals of the study were to understand the processes leading to diagnosis and treatment, perceived barriers and facilitators to accessing care, and parents’ experiences over the course of their child’s eating disorder treatment.
Methods
Ten parents whose children were admitted to a Canadian tertiary level specialized pediatric eating disorders program took part in an exit interview upon their child’s completion of treatment in the program. In-depth semi-structured interviews were combined with a visual timeline. Interpretive induction was performed to generate high-level concepts that emerged from the interviews.
Results
Five high-level concepts were identified: (1) delays in identifying eating disorder symptoms, (2) challenges in accessing eating disorder services, (3) the right treatment at the right time, (4) emotional impact on parents, and (5) parental expertise and involvement.
Conclusions
Several barriers were identified by parents that interfered with treatment, including system-related challenges when accessing specialized eating disorder treatment, concerns about a lack of appropriate mental health support for their child, and difficulties with transitioning between community and tertiary level care. Negative emotions, including guilt and self-blame, were common early in the treatment journey. Themes of parental involvement throughout treatment, and parents taking charge of their child’s recovery, emerged across interviews. The results of this study suggest the importance of early identification of eating disorder symptoms, facilitating smoother transitions between levels of care (e.g., community services and hospital-based eating disorder care), and improving clinical decision-making to ensure children and adolescents with eating disorders receive the most appropriate treatment based on their clinical presentation.
Funder
Michael Smith Foundation for Health Research
Swiss Anorexia Nervosa Foundation
Publisher
Springer Science and Business Media LLC
Subject
Behavioral Neuroscience,Psychiatry and Mental health,Nutrition and Dietetics
Reference40 articles.
1. Accurso EC, Sim L, Muhlheim L, Lebow J. Parents know best: caregiver perspectives on eating disorder recovery. Int J Eat Disord. 2020;53(8):1252–60. https://doi.org/10.1002/eat.23200.
2. Anderson LK, Reilly EE, Berner L, Wierenga CE, Jones MD, Brown TA, et al. Treating eating disorders at higher levels of care: overview and challenges. Curr Psychiatry Rep. 2017;19(8):48. https://doi.org/10.1007/s11920-017-0796-4.
3. BC Children’s Hospital (accessed June 25, 2021). Patient and family centred care. Retrieved from: http://www.bcchildrens.ca/our-services/your-visit/during-your-visit/patient-family-centred-care.
4. Beale B, McMaster R, Hillege S. Eating disorders: a qualitative analysis of the parents' journey. Contemp Nurse. 2005;18(1–2):124–32. https://doi.org/10.5172/conu.18.1-2.124.
5. Berends L. Embracing the visual: using timelines with in-depth interviews on substance use and treatment. Qual Rep. 2011;16:1–9.
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