Is it ethical to prevent secondary use of stored biological samples and data derived from consenting research participants? The case of Malawi-Reference-Cited by-同舟云学术

Is it ethical to prevent secondary use of stored biological samples and data derived from consenting research participants? The case of Malawi

Published:2015-12 Issue:1 Volume:16 Page:
ISSN:1472-6939
Container-title:BMC Medical Ethics
language:en
Short-container-title:BMC Med Ethics

Author:

Mungwira Randy G.,Nyangulu Wongani,Misiri James,Iphani Steven,Ng’ong’ola Ruby,Chirambo Chawanangwa M.,Masiye Francis,Mfutso-Bengo Joseph

Publisher

Springer Science and Business Media LLC

Subject

Health Policy,Health (social science),Issues, ethics and legal aspects

Link

http://link.springer.com/content/pdf/10.1186/s12910-015-0077-x

Reference21 articles.

1. Chen DT, Rosenstein DL, Muthappan P, Hilsenbeck SG, Miller FG, Emmanuel EJ. Research With Stored Biological Samples--What Do Research Participants Want? Arch Intern Med. 2005;165:652–5.

2. Elger BS, Caplan AL. Consent and anonymization in research involving biobanks. EMBO Rep. 2006;7(7):661–6.

3. De Vries J, Abayomi A, Littler K, Madden E, McCurdy S, Ouwe Missi O, et al. Addressing ethical issues in H3Africa Research: Views of research Ethics Committee Members. The HUGO J. 2015;Number:1 doi: 10.1186/s11568-015-0006-6 .

4. The National Health Sciences Research Committee. General Guidelines on Health Research. Access, collection, storage and use of biological specimen. 2007.

5. The Malawi National Commission for Science and Technology. What is the national regulatory requirement and position on access, collection, storage and use of human biological specimen for research in Malawi? 2014.

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