“It’s all about trust”: reflections of researchers on the complexity and controversy surrounding biobanking in South Africa-Reference-Cited by-同舟云学术

“It’s all about trust”: reflections of researchers on the complexity and controversy surrounding biobanking in South Africa

Published:2016-10-10 Issue:1 Volume:17 Page:
ISSN:1472-6939
Container-title:BMC Medical Ethics
language:en
Short-container-title:BMC Med Ethics

Author:

Moodley Keymanthri,Singh Shenuka

Funder

National Institutes of Health

National Research Foundation of South Africa

Publisher

Springer Science and Business Media LLC

Subject

Health Policy,Health (social science),Issues, ethics and legal aspects

Link

http://link.springer.com/content/pdf/10.1186/s12910-016-0140-2.pdf

Reference31 articles.

1. Mayrhofer M. Patient organisations as the (un)usual suspects: the biobanking activities of the Association Francaise contre les Myopathies and its Genethon DNA and cell bank. In: Biobanks: Governance in Comparative Perspective. Routledge: Abingdon; 2008. p. 71–87.

2. Moodley K, Sibanda N, February K, Rossouw T. “It’s my blood”: ethical complexities in the use, storage and export of biological samples: perspectives from South African research participants. BMC Med Ethics. 2014;15:4.

3. Porteri C, Borry P. A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes. Patient Educ Couns J. 2008;71:136–42.

4. Petrini C. “Broad” consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose. Soc Sci Med. 2010;70:217–20.

5. Jurate S, Zivile V, Eugenijus G. ‘Mirroring’ the ethics of Biobanking: What analysis of consent documents can tell us? Sci Eng Ethics. 2014;20:1079–93.

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