Author:
Drevin Jennifer,Nyholm Dag,Widner Håkan,Van Vliet Trinette,Viberg Johansson Jennifer,Jiltsova Elena,Hansson Mats
Abstract
Abstract
Background
Human embryonic stem cells (hESC) as a source for the development of advanced therapy medicinal products are considered for treatment of Parkinson’s disease (PD). Research has shown promising results and opened an avenue of great importance for patients who currently lack a disease modifying therapy. The use of hESC has given rise to moral concerns and been the focus of often heated debates on the moral status of human embryos. Approval for marketing is still pending.
Objective
To Investigate the perspectives and concerns of patients with PD, patients being the directly concerned stakeholders in the ethical discussion.
Methods
Qualitative semi-structured interviews related to this new therapy in seventeen patients from two Swedish cities.
Results
The participants expressed various interests related to the use of human embryos for development of medicinal therapies; however, overall, they were positive towards the use of hESC for treatment of PD. It was deemed important that the donating woman or couple made the choice to donate embryos voluntarily. Furthermore, there were concerns that the industry does not always prioritise the patient over profit; thus, transparency was seen as important.
Publisher
Springer Science and Business Media LLC
Subject
Health Policy,Health (social science),Issues, ethics and legal aspects
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