Abstract
Abstract
Background
Biobanks provide an important foundation for genomic and personalised medicine. In order to enhance their scientific power and scope, they are increasingly becoming part of national or international networks. Public trust is essential in fostering public engagement, encouraging donation to, and facilitating public funding for biobanks. Globalisation and networking of biobanking may challenge this trust.
Methods
We report the results of an Australian study examining public attitudes to the networking and globalisation of biobanks. The study used quantitative and qualitative methods in conjunction with bioethical analysis in order to determine factors that may contribute to, and threaten, trust.
Results
Our results indicate a generally high level of trust in biobanks and in medical research more broadly. Key factors that can reduce perceived trustworthiness of biobanks are commercialisation and involvement in global networking.
Conclusions
We conclude that robust ethical oversight and governance standards can both promote trust in global biobanking and ensure that this trust is warranted.
Funder
National Health and Medical Research Council
Publisher
Springer Science and Business Media LLC
Subject
Health Policy,Health(social science),Issues, ethics and legal aspects
Cited by
22 articles.
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