Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies-Reference-Cited by-同舟云学术

Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies

Published:2016-11-10 Issue:1 Volume:17 Page:
ISSN:1472-6939
Container-title:BMC Medical Ethics
language:en
Short-container-title:BMC Med Ethics

Author:

Aitken Mhairi,de St. Jorre Jenna,Pagliari Claudia,Jepson Ruth,Cunningham-Burley Sarah

Funder

Medical Research Council

Publisher

Springer Science and Business Media LLC

Subject

Health Policy,Health (social science),Issues, ethics and legal aspects

Link

http://link.springer.com/content/pdf/10.1186/s12910-016-0153-x.pdf

Reference38 articles.

1. WMA. WMA Declaration on Ethical Considerations Regarding Health Databases. WMA; 2002. http://www.wma.net/en/30publications/10policies/d1/(accessed 9th June 2016)

2. MRC & Wellcome Trust. Access to Collections of Data and Materials for Health Research. Wellcome Trust; 2006. www.wellcome.ac.uk . Accessed 03 Nov 2016.

3. Wellcome Trust. The One-Way Mirror: Public attitudes to commercial access to health data. 2016. https://ipsos-mori.com/Assets/Docs/Publications/sri-wellcome-trust-commercial-access-to-health-data.pdf .

4. Bradwell & Gallagher. FYI: The new politics of personal information. 2007. www.demos.co.uk . Accessed 03 Nov 2016.

5. Robling MR, Hood K, Houston H, Pill R, Fay J, Evans HM. Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study. J Med Ethics. 2004;30(1):104–9.

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