Author:
Abou Seif Nada,Wood Lisa,Morant Nicola
Abstract
Abstract
Background
The negative impact of caregiving on carers’ physical and psychological wellbeing is well documented. Carers of mental health inpatients have particularly negative experiences and largely report being dissatisfied with how they and their loved one are treated during inpatient care. It remains unclear why, despite policies intended to improve inpatient experiences. A comprehensive review of carers’ inpatient experiences is needed to understand carer needs. As such, we aimed to conduct a systematic review and thematic synthesis of carer experiences of inpatient mental health care.
Methods
We searched MEDLINE, PsycINFO, Embase and CINAHL for qualitative studies examining carer experiences of mental health inpatient care. Searches were supplemented by reference list screening and forward citation tracking of included studies. Results were synthesised using thematic synthesis. Our protocol was registered on PROSPERO (CRD42020197904) and our review followed Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines.
Findings
Twelve studies were included from 6 countries. Four themes were identified: the emotional journey of inpatient care; invisible experts; carer concerns about quality of care for their loved one; and relationships and partnership between carers, service users and staff.
Interpretation
Greater attention should be paid to ensure carers are well-supported, well-informed, and included in care. More emphasis must be placed on fostering positive relationships between carers, service users and staff and in facilitating continuity of care across inpatient and community services to provide carers with a sense of security and predictability. Further research is needed to explore differences in experiences based on carer and service user characteristics and global context, alongside co-production with carers to develop and evaluate future guidelines and policies.
Publisher
Springer Science and Business Media LLC
Subject
Psychiatry and Mental health
Reference58 articles.
1. Magliano L, Mcaid D, Kirkwood S, Berzins K. Carers and families of people with mental health problems. In: Knapp M, Mcaid E, Mossialos E, Thornicroft G, editors. Mental health policy and practice across Europe. Berkshire: McGraw-Hill; 2007. p. 374–96.
2. Brennan A, Warren N, Peterson V, Hollander Y, Boscarato K, Lee S. Collaboration in crisis: Carer perspectives on police and mental health professional’s responses to mental health crises. Int J Ment Health Nurs. 2016;25(5):452–61.
3. Chan SW. Global perspective of burden of family caregivers for persons with schizophrenia. Arch Psychiatr Nurs. 2011;25(5):339–49.
4. Sealy PA. The impact of the process of deinstitutionalization of mental health services in Canada: an increase in accessing of health professionals for mental health concerns. Soc Work Public Health. 2012;27(3):229–37.
5. Parker G, Clarke H. Making the ends meet: Do carers and disabled people have a common agenda? Policy Polit. 2002;30:347–59.
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