Patients’ motivations and interest in research: characteristics of volunteers for patient-led projects on PatientsLikeMe-Reference-Cited by-同舟云学术

Patients’ motivations and interest in research: characteristics of volunteers for patient-led projects on PatientsLikeMe

Published:2016-12 Issue:1 Volume:2 Page:
ISSN:2056-7529
Container-title:Research Involvement and Engagement
language:en
Short-container-title:Res Involv Engagem

Author:

Bradley Meaghan^ORCID,Braverman Julia,Harrington Magdalena,Wicks Paul

Funder

Robert Wood Johnson Foundation

Publisher

Springer Science and Business Media LLC

Subject

General Health Professions,Health(social science)

Link

http://link.springer.com/content/pdf/10.1186/s40900-016-0047-6.pdf

Reference25 articles.

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2. Wicks P, Vaughan T, Heywood J. Subjects no more: what happens when trial participants realize they hold the power? BMJ Br Med J. 2014;368:2–3. Available from: http://www.bmj.com/content/348/bmj.g368 .

3. Wicks P, Massagli MP, Wolf C, Heywood J. Measuring function in advanced ALS: validation of ALSFRS-EX extension items. Eur J Neurol. 2009;16:353–9. Available from: http://www.ncbi.nlm.nih.gov/pubmed/19364363 .

4. O’Connor D. The apomediated world: regulating research when social media Has changed research. J Law Med Ethics. 2013;41:470–83. Available from: http://dx.doi.org/10.1111/jlme.12056 .

5. Mullins CD, Vandigo J, Zheng Z, Wicks P. Patient-centeredness in the design of clinical trials. Value Health. 2014;17:471–5. Available from: http://www.ncbi.nlm.nih.gov/pubmed/24969009 .

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