Taking patient and public involvement online: qualitative evaluation of an online forum for palliative care and rehabilitation research

Author:

Brighton Lisa Jane,Pask Sophie,Benalia Hamid,Bailey Sylvia,Sumerfield Marion,Witt Jana,de Wolf-Linder Susanne,Etkind Simon Noah,Murtagh Fliss E. M.,Koffman Jonathan,Evans Catherine J.

Funder

NIHR CLAHRC South London

King's College London & Wellcome Trust

Publisher

Springer Science and Business Media LLC

Subject

General Health Professions,Health (social science)

Reference36 articles.

1. National Institute for Health and Care Excellence. Patient and public involvement policy. London: National Institute for Health and Care Excellence; 2013. https://www.nice.org.uk/about/nice-communities/public-involvement/patient-and-public-involvement-policy Accessed 14th March 2016

2. National Institute for Health Research (NIHR), What is public involvement in research?. 2014. http://www.invo.org.uk/find-out-more/what-is-public-involvement-in-research-2/ . Accessed 14 Mar 2016.

3. The King's Fund, Making shared decision-making a reality: No decision about me, without me. 2011: Retrieved from https://www.kingsfund.org.uk/sites/default/files/Making-shared-decision-making-a-reality-paper-Angela-Coulter-Alf-Collins-July-2011_0.pdf , accessed 16th August 2017.

4. Best S, et al. The palliative and end of life care priority setting partnership (PEoLC PSP): Determining evidence uncertainties from the perspective of the end user of research. BMJ Support. Palliat. Care. 2014;4(Suppl 1):A42.

5. Hewlett S, et al. Patients and professionals as research partners: challenges, practicalities, and benefits. Arthritis Care Res. 2006;55(4):676–80.

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