Author:
Worboys Hannah M.,Broomfield Jonathan,Smith Aiden,Stannard Rachael,Tyrer Freya,Vounzoulaki Elpida,Czyznikowska Barbara,Grewal-Santini Gurpreet,Greenwood Justin,Gray Laura J.
Abstract
Abstract
Background
Patient and Public Involvement and Engagement (PPIE) is important to all aspects of health research. However, there are few examples of successful PPIE in statistical methodology research. One of the reasons for this relates to challenges in the identification of individuals interested in statistical methodology research projects, and ambiguities over the importance of PPIE to these projects.
Methods
This project was conducted between August 2022 and August 2023. The aim is to report the process of the development of an accessible animation to describe what statistical methodology is and the importance of PPIE in statistical methodology research projects. For this, we combined storyboarding and scriptwriting with feedback from PPIE members and researchers.
Results
After three stages that incorporated feedback from the relevant stakeholders, we produced a final animation about PPIE in statistical methodology. The resulting animation used minimal text, simple animation techniques and was of short duration (< 3 min) to optimise the communication of the key messages clearly and effectively.
Conclusions
The resulting animation provides a starting point for members of the public to learn about PPIE in statistical methodology research and for methodologists who wish to conduct PPIE. We recommend further work to explore ways in which members of the public can be more meaningfully involved in methodology research.
Funder
NIHR ARC East Midlands
NIHR Doctoral Research Fellowship
Cancer Research UK
Virtual Cardio-Oncology Research Initiative
Biomedical Research Centre
Publisher
Springer Science and Business Media LLC
Subject
General Health Professions,Health (social science)
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