Author:
McCarron Tamara L.,Clement Fiona,Rasiah Jananee,Moffat Karen,Wasylak Tracy,Santana Maria Jose
Abstract
Abstract
Background
Patient partners can be described as individuals who assume roles as active members on research teams, indicative of individuals with greater involvement, increased sharing of power, and increased responsibility than traditionally described by patient participants who are primarily studied. A gap still remains in the understanding of how to engage patients. The objective of this commentary is to describe the involvement of four patient partners who worked with researchers during a scoping review.
Main body
We describe approaches to meaningfully engage patient partners in conducting a scoping review. Patient partners were recruited through existing patient networks. Capacity development in the form of the training was provided to these four patient partners. Engagement strategies were co-designed with them to address potential barriers of involvement and acquiring the necessary skills for the successful completion of this scoping review.
Conclusion
Involving patients partners early in the project established the foundational relationship so patient partners could contribute to their fullest. We witnessed the success of working alongside patient partners as members of the research team with a clear and mutually agreed upon purpose of the engagement in health research activities and how this seemed to contribute to an effective and rewarding experience for both researcher and patient partner.
Funder
Alberta Strategy for Patient Oriented Research
Publisher
Springer Science and Business Media LLC
Subject
General Health Professions,Health (social science)
Reference21 articles.
1. INVOLVE. 2020 [Available from: https://www.invo.org.uk. Accessed Mar 2021.
2. PCORI. 2020 [Available from: https://www.pcori.org. Accessed Mar 2021.
3. SPOR. 2020 [Available from: https://cihr-irsc.gc.ca/e/41204.html. Accessed Mar 2021.
4. Baker GR. Evidence boost: a review of research highlighting how patient engagement contributes to improved care; 2014.
5. Buck D, Gamble C, Dudley L, Preston J, Hanley B, Williamson PR, et al. From plans to actions in patient and public involvement: qualitative study of documented plans and the accounts of researchers and patients sampled from a cohort of clinical trials. BMJ Open. 2014;4(12):1–9. https://doi.org/10.1136/bmjopen-2014-006400.
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