Author:
Lo Hog Tian Jason M.,Watson James R.,Deyman Megan,Tran Billy,Kerber Paul,Nanami Kajiko,Norris Deborah,Samson Kim,Cioppa Lynne,Murphy Michael,Mcgee A.,Ajiboye Monisola,Chambers Lori A.,Worthington Catherine,Rourke Sean B.
Abstract
Abstract
Background
Many community-based HIV research studies incorporate principles of greater involvement and meaningful engagement of people living with HIV (GIPA/MEPA) by training people with HIV as peer researchers. Unfortunately, there are still some aspects of research (e.g., quantitative data analysis and interpretation) where many projects fall short in realizing GIPA/MEPA principles. To address these gaps, we developed an eight-week training course that aimed to build the capacity of peer researchers around the understanding and interpretation of quantitative data and incorporating lived experience to increase the impact of the knowledge transfer and exchange phase of a study.
Methods
Peer researchers (n = 8) participated from British Columbia, Alberta, and Ontario and lessons learned from the training were implemented throughout the dissemination of research findings from the People Living with HIV Stigma Index study. This paper presents the curriculum and main training components, course evaluation results, and challenges and lessons learned. The manuscript was created in collaboration with and includes the perspectives of both the peer researchers involved in the training, as well the course facilitators.
Results
Throughout the course, peer researchers’ self-assessed knowledge and understanding of quantitative research and data storytelling improved and, through interactive activities and practice, they gained the confidence to deliver a full research presentation. This improved their understanding of research findings, which was beneficial for discussing results with community partners and study participants. The peer researchers also agreed that learning about integrating lived experience with quantitative data has helped them to make research findings more relatable and convey key messages in a more meaningful way.
Conclusions
Our training curriculum provides a template for research teams to build capacity in areas of research where peer researchers and community members are less often engaged. In doing so, we continue to uphold the principles of GIPA/MEPA and enhance the translation of research knowledge in communities most greatly affected.
Funder
Public Health Agency of Canada
Canadian Institutes of Health Research
TD Bank
Canadian Foundation for AIDS Research
Publisher
Springer Science and Business Media LLC
Subject
General Health Professions,Health (social science)
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