Author:
Papageorgiou Vasiliki,Dewa Lindsay H.,Bruton Jane,Murray Keitumetse-Kabelo,Hewlett Nick,Thamm Wezi,Hamza Husseina,Frumiento Pino,Steward Robyn,Bradshaw Melissa,Brooks-Hall Ellie,Petretti Silvia,Ewans Sarah,Williams Mark,Chapko Dorota
Abstract
Abstract
Background
Co-produced research is when all stakeholders, including experts by experience and researchers, work together to conceptualise, design, deliver and disseminate research to enhance understanding and knowledge. This type of participatory inquiry is being increasingly used across health research; however, it continues to be a complex area to navigate given existing institutional structures.
Main body
We collaborated across three independent co-produced research studies to share insights, reflections, and knowledge of our work in the fields of HIV, mental health, and disability research. We co-designed and delivered a three-hour online workshop at a conference to share these reflections using the metaphor of ‘building bridges’ to describe our co-production journey. We generated key principles of co-production from our different experiences working in each individual research project as well as together across the three projects. Our principles are to: (1) be kind, have fun and learn from each other; (2) share power (as much as you can with people); (3) connect with people you know and don’t know; (4) remain connected; and (5) use clear and simple language.
Conclusion
We recommend that co-produced research needs additional funding, resource, and flexibility to remain impactful and ethical. Co-produced research teams need to be mindful of traditional power structures and ensure that the process is transparent, fair, and ethical. Addressing equality, diversity, and inclusion of traditionally underrepresented groups in research is essential as are the skills, expertise, and experiences of all members of the co-production team.
Funder
Economic and Social Research Council
Imperial College London
NIHR Imperial Biomedical Research Centre
NW London NIHR Applied Research Collaboration
Publisher
Springer Science and Business Media LLC
Subject
General Health Professions,Health (social science)
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