Who should care for people with bleeding disorders?-Reference-Cited by-同舟云学术

Who should care for people with bleeding disorders?

Published:2017-01-26 Issue:1 Volume:4 Page:1-3
ISSN:2055-3390
Container-title:The Journal of Haemophilia Practice
language:en
Short-container-title:

Author:

Harrison Cathy¹

Affiliation:

1. Advanced Nurse Practitioner, Haemophilia and Thrombosis Sheffield Haemophilia and Thrombosis Centre Royal Hallamshire Hospital, United Kingdom of Great Britain and Northern Ireland

Abstract

Abstract An integrated model of specialised-delivered care is widely accepted as the standard of care for people with haemophilia in the UK. Assessment of available evidence on patient outcomes confirms this approach. But leading the specialist care for this group of patients does not require a medical qualification. Specialist nursing is well established within the haemophilia service and offers perhaps the greatest resource as health services cope with cost constraints on the specialist provision of services.

Publisher

Walter de Gruyter GmbH

Link

https://www.sciendo.com/pdf/10.17225/jhp00091

Reference17 articles.

1. 1. Srivastava A, Brewer AK, Mauser-Bunschoten EP, et al. Guidelines for the management of hemophilia. Haemophilia 2013; 19(1): e1-47.10.1111/j.1365-2516.2012.02909.x

2. 2. Pai M, Key NS, Skinner M, et al. NHF-McMaster guideline on care models for haemophilia management. Haemophilia 2016; 22 (Suppl. 3): 6-16.10.1111/hae.13008

3. 3. Yeung C, Santesso N, Zeraatkar D, et al. Integrated multidisciplinary care for the management of chronic conditions in adults: an overview of reviews and an example of using indirect evidence to inform clinical practice recommendations in the field of rare disease. Haemophilia 2016; 22 (Suppl. 3): 41-50.10.1111/hae.13010

4. 4. Kaupp MJ, Säilä H, Belt EA, Hakala M. Beware of the biologicals - hospitals may die: the Rheumatism Foundation Hospital, Heinola, Finland (1951-2010). Clin Rheumatol 2012; 31(8): 1151-4.10.1007/s10067-012-2001-9

5. 5. The King’s Fund. Haywood Rheumatology Centre - case study. October 2014. Available from https://www.kingsfund.org.uk/sites/files/kf/media/haywood-rheumatology-centrekingsfund-oct14.pdf (accessed 14 November 2016).

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