“I hope I’ll outlive him”: A qualitative study of parents’ concerns about being outlived by their child with profound intellectual and multiple disabilities-Reference-Cited by-同舟云学术

“I hope I’ll outlive him”: A qualitative study of parents’ concerns about being outlived by their child with profound intellectual and multiple disabilities

Published:2021-06-02 Issue: Volume: Page:1-11
ISSN:1366-8250
Container-title:Journal of Intellectual & Developmental Disability
language:en
Short-container-title:Journal of Intellectual & Developmental Disability

Author:

Kruithof Kasper¹^ORCID,Olsman Erik²,Nieuwenhuijse Appolonia¹³,Willems Dick¹

Affiliation:

1. Department of Ethics, Law & Humanities, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands

2. Department of Mediating the Good Life, Section of Spiritual Care & Chaplaincy Studies, Protestant Theological University, Groningen

3. Day Care Center for People with PIMD, Omega, Amsterdam, the Netherlands

Funder

ZonMw

Netherlands Organisation for Health Research and Development

Publisher

Informa UK Limited

Subject

General Psychology,Arts and Humanities (miscellaneous),Education

Link

https://www.tandfonline.com/doi/pdf/10.3109/13668250.2021.1920377

Reference42 articles.

1. Strategies that facilitate participation in family activities of children and adolescents with profound intellectual and multiple disabilities: parents’ and personal assistants’ experiences

2. ‘I hope he goes first’: Exploring determinants of engagement in future planning for adults with a learning disability living with ageing parents. What are the issues?

3. Older Carers of Adults with a Learning Disability Confront the Future: Issues and Preferences in Planning

4. Braddock, D. (2002). Aging and developmental disabilities: Demographic and policy issues affecting American families. The best of AAMR: Families and mental retardation: A collection of notable AAMR journal articles across the 20th century, 345–350. https://doi.org/10.1352/0047-6765(1999)037<0155:AADDDA>2.0.CO;2

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