A Scoping Review of Perinatal Palliative Care: Allowing Parents to Be Parents

Author:

Buskmiller Cara1ORCID,Calhoun Byron C.2

Affiliation:

1. Department of Obstetrics, Gynecology, and Reproductive Sciences, The University of Texas Health Science Center at Houston, Houston, Texas

2. Perinatal Diagnostic Center, Charleston Area Medical Center, Charleston, West Virginia

Abstract

Objective–Perinatal palliative care (PPC) is an option for patients who discover that their infant has a life-limiting fetal condition, which decreases the burden of the condition using a multidisciplinary approach. Study Design–This review discusses the landmark literature in the past two decades, which have seen significant growth and development in the concept of PPC. Results–The literature describes the background, quality, and benefits of offering PPC, as well as the ethical principles that support its being offered in every discussion of fetal life-limiting diagnoses. Conclusions–PPC shares a similar risk profile to other options after life-limiting diagnosis, including satisfaction with choice of continuation of pregnancy. The present clinical opinion closes by noting common barriers to establishing PPC programs and offers a response to overcome each one. Key Points

Publisher

Georg Thieme Verlag KG

Subject

Obstetrics and Gynaecology,Pediatrics, Perinatology, and Child Health

Reference39 articles.

1. Perinatal hospice: should all centers have this service?;B C Calhoun;Neonatal Netw,1997

2. A survey of perinatal palliative care programs in the United States: structure, processes, and outcomes;E Denney-Koelsch;J Palliat Med,2016

3. Provision of services in perinatal palliative care: a multicenter survey in the United States;C Wool;J Palliat Med,2016

4. Mortality in the United States, 2017;S L Murphy;NCHS Data Brief,2018

5. Creation of a neonatal end-of-life palliative care protocol;A Catlin;J Perinatol,2002

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