Personalized Massive Open Online Course for Childhood Cancer Survivors: Behind the Scenes

Author:

Berger Claire12,Casagranda Léonie13,Sudour-Bonnange Hélène4,Massoubre Catherine5,Dalle Jean-Hugues6,Teinturier Cecile78,Martin-Beuzart Sylvie9,Guillot Pascale10,Lanlo Virginie11,Schneider Muriele12,Dal Molin Bernard13,Dal Molin Michèle13,Mounier Olivier14,Garcin Arnauld315,Fresneau Brice816,Clavel Jacqueline2,Demoor-Goldschmidt Charlotte817

Affiliation:

1. Department of Pediatric Hematology and Oncology, University-Hospital, Saint-Etienne, France

2. UMR-S1153, Inserm, Paris Descartes University, Paris, France

3. Host Research Team EA4607 SNA-EPIS, Jean Monnet University of Saint-Etienne, PRES Lyon, Saint-Etienne, France

4. Department of Pediatric Oncology and AYA Unit Oscar Lambret Institute, Lille, France

5. Department of Psychiatry, University-Hospital of Saint-Etienne, Saint-Etienne, France

6. Department of Immunology and Hematology, Robert Debré Hospital, GH APHP-Nord Université de Paris, France

7. Department of Pediatric Endocrinology and diebetology, Bicêtre Hospital, Paris Sud University – Kremlin Bicêtre, France

8. Inserm U 1018, CESP, Cancer and Radiation Team, University of Paris-Saclay, Paris-Sud University, Villejuif, France

9. Department of Ophtalmology, Lagny-sur-Marne, France

10. Department of Rhumatology, University Hospital Nantes, Nantes, France

11. Consultant, Communication and Pedagogical Designer Specialized in MOOC, Pantin, France

12. Physical Medicine and Rehabilitation, SMAEC, Miribel, France

13. Advita Productions, Grenoble, France

14. Department of Informatics, University Jean Monnet, Saint-Etienne, France

15. Department of Research, University Hospital, Saint-Etienne, Cedex, France

16. Department of Pediatric Oncology, Gustave Roussy, University of Paris-Saclay, Villejuif, France

17. Department of Pediatric Hematology and Oncology, University-Hospital of Angers, Angers, France

Abstract

Abstract Background Today, in France, it is estimated that 1 in 850 people aged between 20 and 45 years has been treated for childhood cancer, which equals 40,000 to 50,000 people. As late effects of the cancer and its treatment affect a large number of childhood cancer survivors (CCS) and only 30% of them benefit from an efficient long-term follow-up care for prevention, early detection, and treatment of late effects, health education of CCS represents a challenge of public health. Objectives Massive open online courses (MOOCs) are a recent innovative addition to the online learning landscape. This entertaining and practical tool could easily allow a deployment at a national level and make reliable information available for all the CCS in the country, wherever they live. Methods The MOOC team brings together a large range of specialists involved in the long-term follow-up care, but also associations of CCS, video producers, a communication consultant, a pedagogical designer, a cartoonist and a musician. We have designed three modules addressing transversal issues (lifestyle, importance of psychological support, risks of fertility problems) and eight modules covering organ-specific problems. Detailed data on childhood cancer treatments received were used to allocate the specific modules to each participant. Results This paper presents the design of the MOOC entitled “Childhood Cancer, Living Well, After,” and how its feasibility and its impact on CCS knowledge will be measured. The MOOC about long-term follow-up after childhood cancer, divided into 11 modules, involved 130 participants in its process, and resulted in a 170-minute film. The feasibility study included 98 CCS (31 males vs. 67 females; p < 0.0001). Conclusion Such personalized, free, and online courses with an online forum and a possible psychologist consultation based on unique characteristics and needs of each survivor population could improve adherence to long-term follow-up without alarming them unnecessarily.

Funder

Institut National Du Cancer

Publisher

Georg Thieme Verlag KG

Subject

Health Information Management,Computer Science Applications,Health Informatics

Reference45 articles.

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