Supporting adherence and improving quality of life in haemophilia care
Author:
Affiliation:
1. Haemophilia, Great Ormond Street Hospital for Children NHS Foundation Trust, London
Publisher
Mark Allen Group
Subject
General Nursing
Link
http://www.magonlinelibrary.com/doi/pdf/10.12968/bjon.2013.22.12.692
Reference11 articles.
1. Why should we care about quality of life in persons with haemophilia?
2. Potential for development of haemophilia link nurse role within UK hospitals
3. Assessment of Treatment Practice Patterns for Severe Hemophilia A: A Global Nurse Perspective
4. The benefits of prophylaxis: views of adolescents with severe haemophilia
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1. The patient gene therapy journey: Findings from qualitative interviews with trial participants at one UK haemophilia centre;The Journal of Haemophilia Practice;2021-01-01
2. Adherence to prophylaxis in adolescents and young adults with severe haemophilia: a qualitative study with healthcare professionals;Health Psychology and Behavioral Medicine;2020-01-01
3. Adherence to prophylactic haemophilic treatment in young patients transitioning to adult care: A qualitative review;Haemophilia;2018-11
4. Adherence to prophylaxis in adolescents and young adults with severe haemophilia A, a qualitative study with patients;Health Psychology and Behavioral Medicine;2018-01-01
5. Predictors of quality of life among adolescents and young adults with a bleeding disorder;Health and Quality of Life Outcomes;2017-01
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