Affiliation:
1. Registered Nurse for Those with a Learning Disability
Abstract
The purpose of this series is to highlight a range of rare health conditions. Rare health conditions are those that affect no more and usually fewer than 1 person in every 2000 and many HCAs and nurses will encounter some of these conditions, given the high number of them. This 54th article will examine two of these conditions, arthrogryposis multiplex congenita and Edwards syndrome, along with an exploration of the idea of support staff offering spiritual support to those with rare health conditions and their families.