Emotion-focused care requested by hospital patients with dementia via advance care planning

Abstract

Background This study responds to international pressures to improve hospital care for patients with dementia. Aim To reach a concise overview of ways to improve the emotional wellbeing of patients with dementia when in hospital by exploring their personal care requests. Methods Written advance care planning (ACP) documents completed by patients with dementia and their caregivers were retrieved from a UK hospital (n=21) and analysed using descriptive phenomenology. Findings Care requests showed the changeable and personal nature of emotional distress and gave the responses that patients require from hospital staff. Responses included attending to physical health, offering reassurance, being with the patient, treating the patient as a person and providing a different physical environment. Conclusion ACP documents offered a structured tool for informing care with succinct, personalised requests of patients with dementia. Patient requests were consistent with extensive literature defining person-centred care. Increased use of ACP in hospitals requires evaluation.