Understanding childhood lymphoedema

Abstract

Lymphoedema in children can present at any age and can result in major physical and psychological problems, delayed diagnosis, and conflicting and unhelpful information from clinicians and teachers. Parents are often equally distressed by the clinical failures and witnessing their children's distress. Management of lymphoedema focuses on compression, which children and adolescents find to be old fashioned, affects the ability to wear normal clothing and footwear, and encroaches on time with peers. Being different can also lead to being targeted by bullies, being stared at by adults, and undermine their attempts at experiencing normality. Specialist lymphoedema practitioners can provide an accurate diagnosis and adapt treatment to meet the individual needs of young people and can help overcome these difficulties. They are also known to improve levels of support, motivation and treatment outcomes.