How pancreatic cancer impacts carers in the UK: why do we know so little?

Abstract

Background: Pancreatic cancer is a disease with poor life expectancy and high symptom burden. The experiences of the spouses, family and friends who care for this group is poorly understood, especially during palliative care and within the UK. Aims: To highlight the current gaps within research and provide some insight into the challenges faced by carers assisting those living with pancreatic cancer, and how community nurses can support this group. Methods: A total of five research databases were searched using the terms ‘pancreatic cancer’, ‘carer’ and ‘experience’. Cancer and palliative charity websites were also referenced for grey literature. Findings: There is limited research exploring pancreatic cancer carers experiences in the UK healthcare system and community. Available information suggests that this group is likely to face significant psychological and physical challenges to caring. Conclusions: It is vital for community nurses to have an awareness of challenges this group face, to better recognise and support these vulnerable carers.