Oncology nurses' lived experience of caring for patients with advanced cancer in healthcare systems without palliative care services

Author:

Abu-Odah Hammoda1,Leung Doris1,Chan Engle Angela,Bayuo Jonathan1,Su Jing Jing1,Ho Ka-Yan1,Lam Katherine-Ka-Wai1,Yuen John Wai-Man1,Zhao Ivy Yan1,Allsop Matthew J2,Al Zoubi Fadi M3,Al Khaldi Mohammed N4,Krakauer Eric L56,Molassiotis Alex7

Affiliation:

1. School of Nursing, The Hong Kong Polytechnic University, China

2. Academic Unit of Palliative Care, Leeds Institute of Health Sciences, University of Leeds, UK

3. Department of Rehabilitation Sciences, The Hong Kong Polytechnic University, China

4. Turkish-Palestinian Friendship Hospital, Palestine

5. Programme in Global Palliative Care, Harvard Medical School, Boston, Massachusetts, United States of America

6. Division of Palliative Care and Geriatric Medicine, Massachusetts General Hospital, US

7. College of Arts, Humanities and Education, University of Derby, UK

Abstract

Background: Caring for patients with advanced cancer is complex and challenging, requiring varied expertise, including symptom management, communication skills, care coordination and emotional resilience. Within existing literature, the lived experiences of oncology nurses are poorly articulated in countries with a lower income where formal palliative care (PC) is absent. Aim: To explore the lived experiences of Gazan oncology nurses who provide care to patients with advanced cancer in healthcare systems, without formal palliative care infrastructure. Methods: A phenomenological approach was adopted. Semi-structured interviews were conducted between January and April 2022, in the Turkish Palestinian Friendship Hospital. Thematic analysis used the themes (corporeality, relationality, spatiality and temporality) to facilitate reflection on the meaning of participants' lived experiences. Results: Interviews were undertaken with 16 oncology nurses. The experience of the ‘erosion of nurses’ work when coping with anxious attachments to patients and families’ was the overarching theme in nurses’ views, characterised by five sub-themes: (1) inadequacy of PC training and resources, (2) serving humanity, (3) pride in their profession, (4) existential distress and the coping strategies used by nurses, and (5) reported stress and anxiety when caring for seriously ill patients and their families. Conclusions: The study sheds light on the challenges and powerful emotions experienced by oncology nurses who care for patients with advanced cancer, yet lack the necessary PC training and institutional resources. The findings indicate an urgent need for PC training for nurses within the Gazan healthcare system and other lower-income settings. Assessing nurses’ emotions and relationships with patients and family caregivers is imperative to enable optimum care for patients with cancer and to foster resilience among their nurses.

Publisher

Mark Allen Group

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