1. St Oswald’s Hospice and Northgate Hospital, St Oswald’s Hospice, Regent Avenue, Newcastle upon Tyne, NE3 1EE, UK
2. NHS Beacon Learning Disability Palliative Care Team, Northgate and Prudhoe NHS Trust, Northgate Hospital, Morpeth, Northumberland, NE61 3BP, UK
3. University of Northumbria, Ellison Place, Newcastle upon Tyne, NE1 8ST, UK