Parents' experience of extended viewing in a paediatric hospice: a qualitative study

Author:

Smith Philippa1,Teasdale Elizabeth2,Sheppard-Law Suzanne3

Affiliation:

1. Registered Nurse, Sydney Children's Hospital Network, Australia

2. Senior Social Worker, Sydney Children's Hospital Network, Australia

3. Senior Research Fellow (Nursing), University of Technology Sydney; Sydney Children's Hospitals Network, Australia

Abstract

Background: The rising prevalence of life-limiting conditions in children and young people warrants an evaluation of paediatric palliative care, hospice services and delivered care. Aim: First, this study aimed to develop a deeper understanding of how extended viewing is experienced by the parents of a deceased child (or young person) with a life-limiting condition, based in Australia. Second, this study aimed to evaluate the quality of bereavement care delivered during the first few days after death. Findings: A total of 17 bereaved parents of 13 children completed an interview. In-depth interviews were audio-recorded, transcribed verbatim and thematically analysed. While the authors acknowledge the complexity and individual nature of grief, four broad themes were identified, namely the importance of the ‘physical environment’ being conducive to spending time with their child; ‘seeing their child’; ‘time to say goodbye’; and ‘supportive care’. Conclusion: The findings of this study reinforce that extended viewing can provide therapeutic benefits for parents, as well as the importance of a skilled palliative care nursing workforce in assisting with grief management.

Publisher

Mark Allen Group

Subject

Advanced and Specialized Nursing

Cited by 2 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1. Exploring Environmental Considerations for Terminally Ill Pediatric Patients in Palliative Care Inpatient Units: A Narrative Review;HERD: Health Environments Research & Design Journal;2024-08-19

2. Grief support for parents;International Journal of Palliative Nursing;2023-07-02

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