Congenital diaphragmatic hernia: The role of multi-institutional collaboration and patient registries in supporting best practice

Author:

Lally Pamela A.,Skarsgard Erik D.

Publisher

Elsevier BV

Subject

Surgery,Pediatrics, Perinatology and Child Health

Reference50 articles.

1. Registries for Evaluating Patient Outcomes: A User׳s Guide;Gliklich,2010

2. American College of Surgeons. SCR Training and Resources. https://www.facs.org/quality-programs/acs-nsqip/program-specifics/hospitalreq/scrtrain; 2014. Accessed December 4, 2016.

3. Rahm E, Do HH. Data Cleaning: Problems and Current Approaches;2011.

4. US Department of Health and Human Services. The HIPPA privacy rule. https://www.hhs.gov/hipaa/for-professionals/privacy/; 2016. Accessed December 4, 2016.

5. Engaging Patients in Information Sharing and Data Collection: The Role of Patient-Powered Registries and Research Networks;Workman,2013

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