Standard measures for sickle cell disease research: the PhenX Toolkit sickle cell disease collections-Reference-Cited by-同舟云学术

Standard measures for sickle cell disease research: the PhenX Toolkit sickle cell disease collections

Published:2017-12-15 Issue:27 Volume:1 Page:2703-2711
ISSN:2473-9529
Container-title:Blood Advances
language:en
Short-container-title:

Author:

Eckman James R.¹,Hassell Kathryn L.²,Huggins Wayne³,Werner Ellen M.⁴,Klings Elizabeth S.⁵,Adams Robert J.⁶,Panepinto Julie A.⁷,Hamilton Carol M.³^ORCID

Affiliation:

1. Department of Hematology and Medical Oncology, Emory University School of Medicine, Atlanta, GA;

2. Division of Hematology, Department of Internal Medicine, University of Colorado, Denver, Aurora, CO;

3. RTI International, Research Triangle Park, NC;

4. National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD;

5. The Pulmonary Center, Boston University School of Medicine, Boston, MA;

6. Department of Neurology, Medical College of South Carolina, Charleston, SC; and

7. Department of Pediatrics, Hematology/Oncology, Medical College of Wisconsin, Milwaukee, WI

Abstract

Key Points The PhenX Toolkit recommends standard SCD measures for use in clinical, epidemiologic, and genomic studies. Widespread use of PhenX measures will accelerate translational research to elucidate the etiology, epidemiology, and progression of SCD.

Publisher

American Society of Hematology

Subject

Hematology

Link

http://ashpublications.org/bloodadvances/article-pdf/1/27/2703/879334/advances010702.pdf

Reference61 articles.

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2. Definitions of the phenotypic manifestations of sickle cell disease;Ballas;Am J Hematol,2010

3. Adult sickle cell quality-of-life measurement information system (ASCQ-Me): conceptual model based on review of the literature and formative research;Treadwell;Clin J Pain,2014

4. PhenX Toolkit. https://www.phenxtoolkit.org/. Accessed 28 November 2017.

5. PhenX: Establishing a consensus process to select common measures for collaborative research

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