Prevalence and Determinants of Diagnosed Dementia: A Registry Linkage Study Linking Diagnosis of Dementia in the Population-Based HUNT Study to Registry Diagnosis of Dementia in Primary Care and Hospitals in Norway

Author:

Gjøra Linda123,Strand Bjørn Heine145,Bergh Sverre16,Bosnes Ingunn7,Johannessen Aud1,Livingston Gill89,Skjellegrind Håvard Kjesbu1011,Selbæk Geir1412

Affiliation:

1. The Norwegian National Centre for Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway

2. Department of Psychiatry, Levanger Hospital, Nord-Trøndelag Hospital Trust, Levanger, Norway

3. Institute of Health and Society, Faculty of Medicine, University of Oslo, Oslo, Norway

4. Department of Geriatric Medicine, Oslo University Hospital, Oslo, Norway

5. Department of Physical Health and Ageing, Norwegian institute of Public Health, Oslo, Norway

6. Research Centre for Age-related Functional Decline and Disease, Innlandet Hospital Trust, Ottestad, Norway

7. Department of Psychiatry, Namsos Hospital, Nord-Trøndelag Hospital Trust, Namsos, Norway

8. Division of Psychiatry, University College London, London, UK

9. Camden and Islington NHS Foundation Trust, London, UK

10. Department of Public Health and Nursing, HUNT Research Centre, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, Trondheim, Norway

11. Levanger Hospital, Nord-Trøndelag Hospital Trust, Levanger, Norway

12. Institute of Clinical Medicine, Faculty of Medicine, University of Oslo, Oslo, Norway

Abstract

Background: A timely diagnosis of dementia can be beneficial for providing good support, treatment, and care, but the diagnostic rate remains unknown and is probably low. Objective: To determine the dementia diagnostic rate and to describe factors associated with diagnosed dementia. Methods: This registry linkage study linked information on research-based study diagnoses of all-cause dementia and subtypes of dementias, Alzheimer’s disease, and related dementias, in 1,525 participants from a cross-sectional population-based study (HUNT4 70+) to dementia registry diagnoses in both primary-care and hospital registries. Factors associated with dementia were analyzed with multiple logistic regression. Results: Among those with research-based dementia study diagnoses in HUNT4 70+, 35.6% had a dementia registry diagnosis in the health registries. The diagnostic rate in registry diagnoses was 19.8% among home-dwellers and 66.0% among nursing home residents. Of those with a study diagnosis of Alzheimer’s disease, 35.8% (95% confidence interval (CI) 32.6–39.0) had a registry diagnosis; for those with a study diagnosis of vascular dementia, the rate was 25.8% (95% CI 19.2–33.3) and for Lewy body dementias and frontotemporal dementia, the diagnosis rate was 63.0% (95% CI 48.7–75.7) and 60.0% (95% CI 43.3–75.1), respectively. Factors associated with having a registry diagnosis included dementia in the family, not being in the youngest or oldest age group, higher education, more severe cognitive decline, and greater need for help with activities of daily living. Conclusions: Undiagnosed dementia is common, as only one-third of those with dementia are diagnosed. Diagnoses appear to be made at a late stage of dementia.

Publisher

IOS Press

Reference39 articles.

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