Validation of Neuro-QoL and PROMIS Mental Health Patient Reported Outcome Measures in Persons with Huntington Disease

Author:

Carlozzi Noelle E.1,Goodnight Siera1,Kratz Anna L.1,Stout Julie C.2,McCormack Michael K.34,Paulsen Jane S.5,Boileau Nicholas R.1,Cella David6,Ready Rebecca E.7

Affiliation:

1. Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA

2. Institute of Cognitive and Clinical Neurosciences, School of Psychological Sciences, Monash University, Clayton, Victoria, Australia

3. Department of Psychiatry, Rutgers-Robert Wood Johnson Medical School, Piscataway, NJ, USA

4. Department of Pathology, Rowan-School of Medicine, Stratford, NJ, USA

5. Departments of Psychiatry, Neurology, and Psychology, Carver College of Medicine, The University of Iowa, Iowa City, IA, USA

6. Departments of Medical Social Sciences and Preventative Medicine, Northwestern University, Chicago, IL, USA

7. Department of Psychological and Brain Sciences, University of Massachusetts, Amherst, MA, USA

Publisher

IOS Press

Subject

Cellular and Molecular Neuroscience,Clinical Neurology

Reference142 articles.

1. Huntington disease: Natural history, biomarkers and prospects for therapeutics;Ross;Nat Rev Neurol,2014

2. Early detection of Huntington’s disease

3. Neuropsychiatric symptoms are very common in premanifest and early stage Huntington’s disease;Martinez-Horta;Parkinsonism Relat Disord,2016

4. Observing Huntington’s disease: The European Huntington’s Disease Network’s REGISTRY;Orth;PLoS Curr,2010

5. Neuropsychiatric aspects of Huntington’s disease;Paulsen;J Neurol Neurosurg Psychiatry,2001

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