Automatic de-identification of data download packages

Author:

Boeschoten Laura1ORCID,Voorvaart Roos2ORCID,Van Den Goorbergh Ruben3ORCID,Kaandorp Casper4ORCID,De Vos Martine5ORCID

Affiliation:

1. Department of Methodology and Statistics, Utrecht University, Utrecht, The Netherlands. E-mail: l.boeschoten@uu.nl

2. Research and Data Management Services, Utrecht University, Utrecht, The Netherlands. E-mail: r.voorvaart@uu.nl

3. Department of Methodology and Statistics, Utrecht University, Utrecht, The Netherlands. E-mail: r.vandengoorbergh@uu.nl

4. Research and Data Management Services, Utrecht University, Utrecht, The Netherlands. E-mail: c.s.kaandorp@uu.nl

5. Research and Data Management Services, Utrecht University, Utrecht, The Netherlands. E-mail: m.g.devos@uu.nl

Abstract

The General Data Protection Regulation (GDPR) grants all natural persons the right to access their personal data if this is being processed by data controllers. The data controllers are obliged to share the data in an electronic format and often provide the data in a so called Data Download Package (DDP). These DDPs contain all data collected by public and private entities during the course of a citizens’ digital life and form a treasure trove for social scientists. However, the data can be deeply private. To protect the privacy of research participants while using their DDPs for scientific research, we developed a de-identification algorithm that is able to handle typical characteristics of DDPs. These include regularly changing file structures, visual and textual content, differing file formats, differing file structures and private information like usernames. We investigate the performance of the algorithm and illustrate how the algorithm can be tailored towards specific DDP structures.

Publisher

IOS Press

Subject

General Medicine

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