Prenatal counseling: Guidelines for the care of people with spina bifida

Author:

Church Paige Terrien121,Castillo Heidi31,Castillo Jonathan31,Berndl Anne12,Brei Timothy4,Heuer Gregory5,Howell Lori J.6,Merkens Mark7

Affiliation:

1. Department of Newborn and Developmental Paediatrics, Sunnybrook Health Sciences Centre, Toronto, ON, Canada

2. Department of Paediatrics, University of Toronto, Toronto, ON, Canada

3. Meyer Center for Developmental Pediatrics, Texas Children’s Hospital/BMC, Houston, TX, USA

4. Developmental Pediatrics, Seattle Children’s Hospital, Seattle, WA, USA

5. Division of Neurosurgery, Children’s Hospital of Philadelphia, Philadelphia, PA, USA

6. Center for Fetal Diagnosis and Treatment, Children’s Hospital of Philadelphia, Philadelphia, PA, USA

7. Developmental Pediatrics, Portland, Oregon Health and Science University, OR, USA

Abstract

As the diagnosis of Spina Bifida (SB) is often made prenatally, SB-specific prenatal counseling is needed. It is essential to provide information about medical care and lifelong impact of this diagnosis, treatment options available to women carrying fetuses affected, and resources that will assist in the care of individuals with SB. This article outlines the SB Prenatal Counseling Guidelines from the 2018 Spina Bifida Association’s Fourth Edition of the Guidelines for the Care of People with Spina Bifida and acknowledges that further research in SB prenatal counseling is warranted.

Publisher

IOS Press

Subject

Rehabilitation,Physical Therapy, Sports Therapy and Rehabilitation,Pediatrics, Perinatology and Child Health

Reference23 articles.

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3. Experiences of prenatal diagnosis of Spina Bifida or hydrocephalus in parents who decide to continue with their pregnancy;Chaplin;J Genetic Couns.,2005

4. The experience of parents with children with myelomeningocele who underwent prenatal surgery;Antiel;J Pediatr Rehab Med.,2018

5. Prenatal genetic counseling in cross-cultural medicine: a framework for family physicians;Bhogal;Canadian Family Phys.,2010

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