Cross-Registry Benchmarking of Data Quality: Lessons Learned-Reference-Cited by-同舟云学术

Cross-Registry Benchmarking of Data Quality: Lessons Learned

Published:2023-05-18 Issue: Volume: Page:
ISSN:0926-9630
Container-title:Caring is Sharing – Exploiting the Value in Data for Health and Innovation
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Author:

Stausberg Jürgen¹^ORCID,Harkener Sonja¹,Engel Christoph²,Finger Robert³,Heinz Carsten⁴,Jenetzky Ekkehart⁵⁶,Jersch Patrick⁷,Martin David⁵⁸,Rupp Rüdiger⁷,Schoenthaler Martin⁹,Suwelack Barbara¹⁰,Wegner Jeannine¹⁰

Affiliation:

1. University Duisburg-Essen, Faculty of Medicine, IMIBE, Essen, Germany

2. Leipzig University, IMISE, Leipzig, Germany

3. Department of Ophthalmology, University Hospital Bonn, Bonn, Germany

4. Department of Ophthalmology, St. Franziskus-Hospital Münster, Münster, Germany

5. Faculty of Health/School of Medicine, Witten/Herdecke University, Witten, Germany

6. University Medical Center of the Johannes-Gutenberg-University, Mainz, Germany

7. Department of Pediatrics, Eberhard-Karls University Tübingen, Tübingen, Germany

8. Spinal Cord Injury Center, Heidelberg University Hospital, Heidelberg, Germany

9. Department of Urology, University of Freiburg, Freiburg, Germany

10. University Hospital Münster, Transplant Nephrology, Münster, Germany

Abstract

Feedback of data quality measures to study sites is an established procedure in the management of registries. Comparisons of data quality between registries as a whole are missing. We implemented a cross-registry benchmarking of data quality within the field of health services research for six projects. Five (2020) and six (2021) quality indicators were selected from a national recommendation. The calculation of the indicators was adjusted to the registries’ specific settings. Nineteen (2020) and 29 results (2021) could be included in the yearly quality report. Seventy-four per cent (2020) and 79% (2021) of the results did not include the threshold in their 95%-confidence-limits. The benchmarking revealed several starting points for a weak-point analysis through a comparison of results with a predefined threshold as well as through comparisons among each other. In the future, a cross-registry benchmarking might be part of services provided through a health services research infrastructure.

Publisher

IOS Press

Link

https://ebooks.iospress.nl/pdf/doi/10.3233/SHTI230096