Comprehensive Understanding of Hispanic Caregivers: Focus on Innovative Methods and Validations

Author:

Sehar Ujala1,Rawat Priyanka1,Choudhury Moumita2,Boles Annette3,Culberson John4,Khan Hafiz5,Malhotra Keya6,Basu Tanisha1,Reddy P. Hemachandra12578

Affiliation:

1. Department of Internal Medicine, Texas Tech University Health Sciences Center, Lubbock, TX, USA

2. Department of Speech, Language and Hearing Sciences, School Health Professions, Texas Tech University Health Sciences Center, Lubbock, TX, USA

3. MedPace, Cincinnati, OH, USA

4. Department of Family Medicine, Texas Tech University Health Sciences Center, Lubbock, TX, USA

5. Department of Public Health, School of Population and Public Health, Texas Tech University Health Sciences Center, Lubbock, TX, USA

6. Grace Clinic, Covenant Health System, Lubbock, TX, USA

7. Neurology, Departments of School of Medicine, Texas Tech University Health Sciences Center, Lubbock, TX, USA

8. Nutritional Sciences Department, College of Human Sciences, Texas Tech University, Lubbock, TX, USA

Abstract

Alzheimer’s disease (AD) and Alzheimer’s disease-related disorders (ADRD) are late-onset, age-related progressive neurodegenerative disorders, characterized by memory loss and multiple cognitive impairments. Current research indicates that Hispanic Americans are at an increased risk for AD/ADRD and other chronic conditions such as diabetes, obesity, hypertension, and kidney disease, and given their rapid growth in numbers, this may contribute to a greater incidence of these disorders. This is particularly true for the state of Texas, where Hispanics are the largest group of ethnic minorities. Currently, AD/ADRD patients are taken care by family caregivers, which puts a tremendous burden on family caregivers who are usually older themselves. The management of disease and providing necessary/timely support for patients with AD/ADRD is a challenging task. Family caregivers support these individuals in completing basic physical needs, maintaining a safe living environment, and providing necessary planning for healthcare needs and end-of-life decisions for the remainder of the patient’s lifetime. Family caregivers are mostly over 50 years of age and provide all-day care for individuals with AD/ADRD, while also managing their health. This takes a significant toll on the caregiver’s own physiological, mental, behavioral, and social health, in addition to low economic status. The purpose of our article is to assess the status of Hispanic caregivers. We also focused on effective interventions for family caregivers of persons with AD/ADRD involving both educational and psychotherapeutic components, and a group format further enhances effectiveness. Our article discusses innovative methods and validations to support Hispanic family caregivers in rural West Texas.

Publisher

IOS Press

Subject

Psychiatry and Mental health,Geriatrics and Gerontology,Clinical Psychology,General Neuroscience

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