Important but not Enough – Information about HD Related Topics and Peer and Professional Support for Young Adults from HD Families-Reference-Cited by-同舟云学术

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Important but not Enough – Information about HD Related Topics and Peer and Professional Support for Young Adults from HD Families

Published:2016-12-15 Issue:4 Volume:5 Page:379-387
ISSN:1879-6397
Container-title:Journal of Huntington's Disease
language:
Short-container-title:JHD

Author:

Braisch Ulrike¹,Martinez-Horta Saul²,MacDonald Marcy³,Orth Michael⁴

Affiliation:

1. Institute of Epidemiology and Medical Biometry, Ulm University, Germany

2. Biomedical Research Institute Sant Pau (IIB-Sant Pau). Movement Disorders Group. Hospital de la Santa Creu i Sant Pau, Barcelona, Spain

3. Center for Human Genetic Research, Massachusetts General Hospital, Boston, MA, USA

4. Department of Neurology, Ulm University, Germany

Publisher

IOS Press

Subject

Cellular and Molecular Neuroscience,Neurology (clinical)

Reference17 articles.

1. Huntington’s disease: From molecular pathogenesis to clinical treatment;Ross;Lancet Neurol,2011

2. The impact of Huntington’s disease on family life;Vamos;Psychosomatics,2007

3. Young people’s experiences of growing up in a family affected by Huntington’s disease;Forrest Keenan;Clin Genet,2007

4. Environmental enrichment and brain repair: Harnessing the therapeutic effects of cognitive stimulation and physical activity to enhance experience-dependent plasticity;Hannan;Neuropathol Appl Neurobiol,2014

Cited by 5 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. A scoping review of health literacy in rare disorders: key issues and research directions;Orphanet Journal of Rare Diseases;2024-09-06

2. A pilot evaluation of an 8-week mindfulness-based stress reduction program for people with pre-symptomatic Huntington’s disease;Journal of Community Genetics;2023-07-17

3. Identification of psychoeducation needs and an intervention response for pre-symptomatic Huntington’s disease;Journal of Community Genetics;2022-12-10

4. Searching for Answers: Information-Seeking by Young People At-Risk for Huntington’s Disease;Journal of Huntington's Disease;2022-08-30

5. Huntington’s Disease;Handbook of Pragmatic Language Disorders;2021

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