Survey of the Huntington’s Disease Patient and Caregiver Community Reveals Most Impactful Symptoms and Treatment Needs
Author:
Affiliation:
1. Huntington’s Disease Society of America (HDSA), New York, NY, USA
2. American Board of Perianesthesia Nursing Certification, Inc., New York, NY, USA
Publisher
IOS Press
Subject
Cellular and Molecular Neuroscience,Neurology (clinical)
Reference9 articles.
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2. Dysexecutive syndromes in neurologic disease;Hanna-Pladdy;J Neurol Phys Ther,2007
3. Examining Huntington’s disease patient and informant concordance on frontally mediated behaviors;Hergert;J Clin Exp Neuropsychol,2015
4. Turner-Bowker D , Hao Y , Foley C , Galipeau N , Mazar I , Krohe M , et al. The use of patient-reported outcomes in advanced breast cancer clinical trials: A review of the published literature. Curr Med Res Opin [Internet]. 2016 [cited 9 August 2016]; Available from: http://www.tandfonline.com/doi/abs/10.1080/03007995.2016.1205005
5. The Huntington’s disease health-related Quality of Life questionnaire (HDQoL): A disease-specific measure of health-related quality of life;Hocaoglu;Clin Genet,2012
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