Pediatric spinal cord injury rehabilitation: A protocol for an international multicenter project (SINpedSCI)-Reference-Cited by-同舟云学术

Pediatric spinal cord injury rehabilitation: A protocol for an international multicenter project (SINpedSCI)

Published:2021-12-31 Issue: Volume: Page:1-9
ISSN:1874-5393
Container-title:Journal of Pediatric Rehabilitation Medicine
language:
Short-container-title:PRM

Author:

Roaldsen Kirsti Skavberg¹²³,Jørgensen Vivien¹,Höfers Wiebke¹²,Sällström Susanne¹,Augutis Marika⁴⁵,Ertzgaard Per⁶⁷,Wahman Kerstin⁴⁵,Strøm Mona⁸,Vege Kristine Marie⁸⁹,Sørland Kristine⁸,Liu GenLin¹⁰,Zhang Qi¹¹,Yang Yu-Xi¹²,Chen Yang¹²,Zakharova Olga¹³,Trukhankina Zinaida¹⁴,Ghatasha Atheer¹⁵,Hamdan Eman¹⁵,Krasovsky Tal¹⁶¹⁷,Guttman Dafna¹⁶,Sunnerhagen Katharina Stibrant¹⁸,New Peter W.¹⁹²⁰²¹,Bushnik Tamara²²,Sukhov Renat²²,Stanghelle Johan K.¹⁹

Affiliation:

1. Department of Research, Sunnaas Rehabilitation Hospital, Nesodden, Norway

2. Department of Physiotherapy, Faculty of Health Sciences, Oslo Metropolitan University, Oslo, Norway

3. Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska Institute, Stockholm, Sweden

4. Department of Neurobiology, Care Sciences and Society, Division of Neurogeriatrics, Karolinska Institute, Stockholm, Sweden

5. Research and Development Unit, Rehab Station Stockholm, Stockholm, Sweden

6. Department of Rehabilitation Medicine and Department of Medical and Health Sciences, University Hospital, Linköping, Sweden

7. H.R.H. Crown Princess Victoria’s Children and Youth Hospital, Linköping Hospital, Sweden

8. Department for Spinal Cord Injury, Unit for Children and Adolescents, Sunnaas Rehabilitation Hospital, Nesodden, Norway

9. Institute of Clinical Medicine, Faculty of Medicine, University of Oslo, Oslo, Norway

10. Department of Spinal Cord Injury Rehabilitation, China Rehabilitation Research Center (CRRC) and Capital Medical University School of Rehabilitation Medicine, Beijing Bo’ai Hospital, Beijing, China

11. Department of Physical Therapy, China Rehabilitation Research Center (CRRC) and Capital Medical University School of Rehabilitation Medicine, Beijing Bo’ai Hospital, Beijing, PR China

12. SCI Rehabilitation, Bayi Rehabilitation Center, Yongning Town, Chengdu, PR China

13. Children’s City Hospital, Petrozavodsk, Karelia, Russia

14. Republican Children’s Hospital, Petrozavodsk, Karelia, Russia

15. Bethlehem Arab Society for Specialized Rehabilitation and Surgery, Bethlehem, Palestine

16. Department of Pediatric Rehabilitation, The Edmond & Lily Safra Children’s Hospital, Chaim Sheba Medical Center (SMC), Tel-Hashomer, Israel

17. Department of Physical Therapy, University of Haifa, Haifa, Israel

18. Department of Clinical Neuroscience at Institute of Neuroscience and Physiology, Sahlgrenska Academy at University of Gothenburg, Gothenburg, Sweden

19. Department of Rehabilitation, Spinal Rehabilitation Service, Caulfield Hospital, Alfred Health, Melbourne, Australia

20. Epworth-Monash Rehabilitation Medicine Unit, Monash University, Melbourne, Victoria, Australia VIC

21. Department of Epidemiology and Preventive Medicine, School of Public Health & Preventive Medicine, Monash University, Victoria, Australia VIC

22. Rusk Rehabilitation, New York University Langone Health, New York, NY, USA

Abstract

PURPOSE: Children and adolescents (<18 years old) who sustain a spinal cord injury (SCI) should ideally be managed in specialized rehabilitation services. This project aims to describe the organization of pediatric SCI in ten rehabilitation units in seven countries and to qualitatively explore psychosocial aspects of adolescents living with SCI. METHODS: A multicenter cross-sectional project is planned, using quantitative (web survey) and qualitative (interview) methods in ten rehabilitation units from Norway, Sweden, United States, Israel, PR China, Russia and Palestine. Individual interviews will be conducted with ≥20 adolescents aged 13–17 years at least 6 months’ post rehabilitation. RESULTS: Units involved will be described and compared, according to funding, attachment to an acute SCI unit, catchment area, number of beds, admittance and discharge procedures, availability of services, staff/patient ratio, content and intensity of rehabilitation programs, length of stay, measurement methods, follow-up services, health promotion services, and pediatric SCI prevention acts. The semi-structured interview guide will include experiences from acute care and primary rehabilitation, daily life, school, contact with friends, leisure time activities, peers, physical and psychological health, and the adolescents’ plans for the future. CONCLUSION: Based on the present protocol, this project is likely to provide new insight and knowledge on pediatric SCI rehabilitation and increase the understanding of pediatric SCI in adolescents and their families internationally.

Publisher

IOS Press

Subject

Rehabilitation,Physical Therapy, Sports Therapy and Rehabilitation,Pediatrics, Perinatology and Child Health

Reference30 articles.

1. Vogel LC , Zebracki K , Mulcahey MJ . Special considerations for rehabilitation of pediatric spinal cord injury. In: Chhabra HS, editor. ISCoS textbook in comprehensive management of spinal cord injuries. 1st ed. New Delhi: Wolters Kluwer; 2015.

2. Spinal cord injury in the pediatric population: a systematic review of the literature;Parent;J Neurotrauma,2011

3. Vogel CL , Zebracki K , Betz RR , Mulcahey MJ , editors. Spinal cord injury in the child and young adult. London: Wiley; 2015.

4. Global mapping for the epidemiology of paediatric spinal cord damage: towards a living data repository;New;Spinal Cord,2019

5. Zebracki K , Vogel LC . Epidemiology of pediatric onset spinal cord injuries in the United States. In: Rahimi-MovagharV, Jazayeri SB,Vaccaro AR, editors. Epidemiology of spinal cord injuries. New York: Nova Science Publishers; 2012;19–28.

Cited by 3 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Activity based restorative therapy considerations for children: medical and therapeutic perspectives for the pediatric population;Frontiers in Rehabilitation Sciences;2023-09-06

2. Nurse Practitioners in a Canadian Pediatric Rehabilitation Hospital: A Description of Roles and Scope of Practice;Journal of Pediatric Health Care;2023-09

3. Musical therapy, technology devices and AV aids in children with traumatic brain injury and cervical cord contusion with vocal cord paralysis;Indian Journal of Physical Medicine & Rehabilitation;2023