Young People Living at Risk of Huntington’s Disease: The Lived Experience-Reference-Cited by-同舟云学术

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Young People Living at Risk of Huntington’s Disease: The Lived Experience

Published:2018-11-24 Issue:4 Volume:7 Page:391-402
ISSN:1879-6397
Container-title:Journal of Huntington's Disease
language:
Short-container-title:JHD

Author:

Lewit-Mendes Miranda F.¹²,Lowe Georgia C.¹,Lewis Sharon¹³,Corben Louise A.¹²³,Delatycki Martin B.¹²³⁴

Affiliation:

1. Murdoch Children’s Research Institute, Royal Children’s Hospital, Parkville, VIC, Australia

2. School of Psychological Sciences, Monash University, Clayton, VIC, Australia

3. Department of Paediatrics, University of Melbourne, Parkville, VIC, Australia

4. Victorian Clinical Genetics Services, Royal Children’s Hospital, Parkville, VIC, Australia

Publisher

IOS Press

Subject

Cellular and Molecular Neuroscience,Neurology (clinical)

Reference41 articles.

1. The clinical and genetic features of Huntington disease;Sturrock;J Geriatr Psychiatry Neurol,2010

2. A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington’s disease chromosomes;MacDonald;Cell,1993

3. Huntington’s disease: From molecular pathogenesis to clinical treatment;Ross;Lancet Neurol,2011

4. The emotional experiences of family carers in Huntington disease;Williams;J Adv Nurs,2009

5. “I’m scared of being like mum”: The experience of adolescents living in families with Huntington disease;Mand;J Huntington Dis,2015

Cited by 14 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Predictive genetic testing for Huntington's disease: Exploring participant experiences of uncertainty and ambivalence between clinic appointments;Journal of Genetic Counseling;2024-05-13

2. Social Cognitive Rehabilitation for Neurodegenerative Disorders;Advances in Medical Technologies and Clinical Practice;2024-03-22

3. Experiences of young people growing up in a family with Huntington's disease: A meta‐ethnography of qualitative research;Journal of Genetic Counseling;2024-03-12

4. Informal care in Huntington's disease: Assessment of objective-subjective burden and its associated risk and protective factors;Annals of Physical and Rehabilitation Medicine;2023-05

5. Layers of Loss: A Scoping Review and Taxonomy of HD Caregivers’ Spiritual Suffering, Grief/Loss and Coping Strategies;Journal of Pain and Symptom Management;2023-01

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