Evaluating Implementation and Outcomes of a Person-Centered Care Model for People with Dementia in the Rehabilitation In-Patient Setting: Project Protocol

Author:

Chenoweth Lynn1,Williams Anna2,McGuire Jane3,Reyes Patricia3,Maiden Genevieve3,Brodaty Henry1,Liu Zhixin4,Cook Jacquelene5,McCade Donna3,Taylor-Rubin Cathleen3,Freeman Matilda3,Burley Claire1

Affiliation:

1. Centre for Healthy Brain Ageing (CHeBA), Discipline of Psychiatry, UNSW Medicine and Health, UNSW, Sydney, NSW, Australia

2. School of Nursing and Midwifery, Parramatta South Campus, Western Sydney University, Penrith, NSW, Australia

3. War Memorial Hospital, Uniting, South Eastern Sydney Local Health District (SESLHD), Waverley, NSW, Australia

4. Health direct Australia, Haymarket, NSW, Australia

5. UNSW Medicine and Health, Department of Aged Health, Chronic Care and Rehabilitation Concord Hospital, Sydney Local Health District, Concord, NSW, Australia

Abstract

Background: While Australian guidelines promote person-centered healthcare (PCC) for persons with dementia, healthcare systems, routines, rules, and workplace cultures can pose challenges in the provision of PCC. Objective: To present a knowledge translation protocol of the PCC model in a sub-acute rehabilitation hospital. Methods: The two-year pre/post/follow-up translation project will include (n = 80) persons with dementia, (n = 80) adult family/carers of patient participants, (n = 60) healthcare staff (medical, nursing, allied health), and (n = 8) PCC staff champions. Champions will complete six half-days’ training in PCC. Medical, nursing, and allied health staff will be provided with PCC learning manuals, complete six hours of online PCC education and attend six face-to-face PCC education sessions. Champions will provide ongoing support to staff in PCC practice. The Reach, Effectiveness, Adoption, Implementation, and Maintenance (RE-AIM) framework will be used to evaluate: i) outcomes for prospective patients provided with PCC, compared with a matched sample of retrospective patients (primary outcomes agitation incidence and severity); 2) champion and staff PCC knowledge, confidence, engagement, and practice quality; 3) person, family/carer, champion, and staff satisfaction with PCC; 4) PCC costs and benefits; and 5) organizational structures, systems and policies required to implement and maintain PCC in sub-acute healthcare. Results: We will identify if PCC benefits persons with dementia, staff, and healthcare services, and we will generate evidence on the educational and organizational resources required to embed PCC in practice. Conclusion: Project findings will inform tailored PCC education applications for dissemination in healthcare and produce evidence-based PCC practice guidelines to improve healthcare for persons with dementia.

Publisher

IOS Press

Subject

Psychiatry and Mental health,Geriatrics and Gerontology,Clinical Psychology,General Medicine,General Neuroscience

Reference50 articles.

1. Australian Institute of Health and Welfare (AIHW) (2021) Dementia in Australia. Summary Report. Australian Government: Canberra. Cat. No: DEM 2, pp. 1-17.

2. Australian Institute of Health and Welfare (AIHW) (2020) Patterns of health service use by people with dementia in their last year of life: New South Wales and Victoria. Australian Government: Canberra, ACT. Cat. no: AGE 102, pp1-66. ISBN: 978-1-76054-675-5.

3. Barriers to managing behavioural and psychological symptoms of dementia: Staff perceptions;Ervin;Collegian,2014

4. Failure to maintain: A theoretical proposition for a new quality indicator of nurse care rationing for complex older people in hospital;Bail;Int J Nursing Studies,2016

5. Challenges and opportunities in understanding dementia and delirium in the acute hospital;Jackson;PloS Med,2017

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