Impact of the Pandemic Time on the Mental Health of People with Dementia and Their Family Caregivers in Brazil and Chile: One-Year Follow-Up

Author:

Olavarría Loreto1234,Caramelli Paulo5,Lema José1,Andrade Caíssa Bezerra de5,Pinto Alejandra6,Azevedo Lílian Viana dos Santos5,Thumala Daniela17,Vieira Maria Carolina Santos8,Rossetti Adriana Peredo8,Generoso Alana Barroso8,Carmona Karoline Carvalho5,Sepúlveda-Loyola Walter9,Pinto Ludmilla Aparecida Cardoso5,Barbosa Maira Tonidandel58,Slachevsky Andrea12610ORCID

Affiliation:

1. Geroscience Center for Brain Health and Metabolism (GERO), Santiago, Chile

2. Physiopathology Department – Institute of Biomedical Sciences (ICBM), Neuroscience and East Neuroscience Departments, Faculty of Medicine, Neuropsychology and Clinical Neuroscience Laboratory (LANNEC), Universidad de Chile, Santiago, Chile

3. Psychiatry Department, Faculty of Medicine, Universidad de Chile, Santiago, Chile

4. Latin American Brain Health Institute (BrainLat), Universidad Adolfo Ibanez, Santiago, Chile

5. Faculdade de Medicina, Behavioral and Cognitive Neurology Research Group, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil

6. Neurology Department, Memory and Neuropsychiatric Center (CMYN), Memory Unit, Hospital del Salvador and Faculty of Medicine, Universidad de Chile, Santiago, Chile

7. Department of Psychology, Faculty of Social Sciences, University of Chile, Santiago, Chile

8. Faculdade Ciências Médicas de Minas Gerais, Geriatric Medicine, Belo Horizonte, Brazil

9. Faculty of Health and Social Sciences, Universidad de Las Américas. Santiago, Chile

10. Departamento de Medicina, Servicio de Neurología, Clínica Alemana-Universidad del Desarrollo, Santiago, Chile

Abstract

Background: Previous studies reported the negative impact of social isolation on mental health in people with dementia (PwD) and their caregivers, butlongitudinal studies seem scarcer. Objective: To describe a one-year follow-up impact of the COVID-19 pandemic on PwD and their caregivers in both Brazil and Chile. Methods: This study analyzed the impact of the pandemic on the psychological and physical health of PwD and their family caregivers after one year of follow-up in three outpatient clinics in Brazil (n = 68) and Chile (n = 61). Results: In both countries, PwD reduced their functional capacity after one year of follow-up (p = 0.017 and p = 0.009; respectively) and caregivers reported worse physical and mental health (p = 0.028 and p = 0.039). Only in Chile, caregivers reported more sadness associated with care (p = 0.001), and reduced time sleeping (p = 0.07). Conclusions: In conclusion, the COVID-19 pandemic appears to have had a long-lasting impact on PwD and their caregivers. However, it is essential to acknowledge that the inherent progression of dementia itself may also influence changes observed over a year.

Publisher

IOS Press

Reference42 articles.

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