Evaluation of an Educational Whiteboard Video to Introduce Fertility Preservation to Female Adolescents and Young Adults With Cancer

Author:

Greenspoon Talia1,Charow Rebecca2,Papadakos Janet23,Samadi Mahsa1,Maloney Anne Marie4,Paulo Chelsea1,Forcina Victoria5,Chen Li1,Thavaratnam Adrian5,Mitchell Laura5,Lorenzo Armando6,Gupta Abha A.45

Affiliation:

1. Department of Pediatrics, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada

2. Cancer Health Literacy Research Centre, Cancer Education Program, Princess Margaret Cancer Centre, Toronto, Ontario, Canada

3. Patient Education, Cancer Care Ontario; University of Toronto, Institute of Health Policy, Management & Evaluation, Toronto, Ontario, Canada

4. Division of Hematology/Oncology, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada

5. Adolescent & Young Adult Program, Princess Margaret Cancer Centre, Toronto, Ontario, Canada

6. Division of Pediatric Urology, The Hospital for Sick Children and Department of Surgery, University of Toronto, Toronto, Ontario, Canada

Abstract

PURPOSE: Fertility is an important issue for adolescents and young adults with cancer facing potential infertility. Egg cryopreservation options exist, but information is sometimes overwhelming. We evaluated a fertility preservation educational video and assessed patient and family knowledge and impressions at pre- and post-video timepoints. METHODS: We developed a whiteboard video to explain egg cryopreservation to patients and families. The video was evaluated on the basis of patient education best practices (readability, understandability, actionability). Participants were recruited using convenience sampling in oncology clinics. They completed questionnaires before and after watching to assess knowledge and interest. Inclusion criteria were patients age 13-39 years and minimum 1 month from diagnosis. Descriptive statistics, correlation analyses, and mean comparisons were conducted. RESULTS: The video script read at a grade 8 reading level. Average understandability and actionability scores were below the acceptable standard. We recruited 108 patients (mean age, 27 years) and 39 caregivers/partners. Patients’ knowledge about fertility preservation increased after viewing the video. Interest was high before and after, and satisfaction was high for both patients and caregivers. Participants appreciated information on process, procedure, and delivery but desired more information on logistics, including cost. CONCLUSION: A targeted patient education video about fertility preservation options can build knowledge and encourage discussions about infertility. The video can be used as a model for videos on related topics to provide accurate information in a youth-friendly medium; however, following patient education best practices for readability, understandability, and actionability may increase video effectiveness. Future research should assess how audiovisual patient education material affects patient behavior.

Publisher

American Society of Clinical Oncology (ASCO)

Subject

Oncology (nursing),Health Policy,Oncology

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