Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease-Reference-Cited by-同舟云学术

Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease

Published:2020-02-24 Issue:1 Volume:7 Page:
ISSN:2052-4463
Container-title:Scientific Data
language:en
Short-container-title:Sci Data

Author:

Smolensky Luba^ORCID, ,Amondikar Ninad,Crawford Karen,Neu Scott,Kopil Catherine M.,Daeschler Margaret,Riley Lindsey,Brown Ethan,Toga Arthur W.,Tanner Caroline

Abstract

AbstractFox Insight is an online, longitudinal health study of people with and without Parkinson’s disease with targeted enrollment set to at least 125,000 individuals. Fox Insight data is a rich data set facilitating discovery, validation, and reproducibility in Parkinson’s disease research. The dataset is generated through routine longitudinal assessments (health and medical questionnaires evaluated at regular cycles), one-time questionnaires about environmental exposure and healthcare preferences, and genetic data collection. Qualified Researchers can explore, analyze, and download patient-reported outcomes (PROs) data and Parkinson’s disease- related genetic variants at https://foxden.michaeljfox.org. The full Fox Insight genetic data set, including approximately 600,000 single nucleotide polymorphisms (SNPs), can be requested separately with institutional review and are described outside of this data descriptor.

Publisher

Springer Science and Business Media LLC

Subject

Library and Information Sciences,Statistics, Probability and Uncertainty,Computer Science Applications,Education,Information Systems,Statistics and Probability

Link

http://www.nature.com/articles/s41597-020-0401-2.pdf

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