Survival and healthcare utilization of infants diagnosed with lethal congenital malformations
Author:
Publisher
Springer Science and Business Media LLC
Subject
Obstetrics and Gynaecology,Pediatrics, Perinatology, and Child Health
Link
http://www.nature.com/articles/s41372-018-0227-3.pdf
Reference45 articles.
1. Wilkinson DJ, Thiele P, Watkins A, De Crespigny L. Fatally flawed? A review and ethical analysis of lethal congenital malformations. BJOG. 2012;119:1302–8.
2. Wilkinson D, de Crespigny L, Xafis V. Ethical language and decision-making for prenatally diagnosed lethal malformations. Semin Fetal Neonatal Med. 2014;19:306–11.
3. Janvier A, Farlow B, Wilfond BS. The experience of families with children with trisomy 13 and 18 in social networks. Pediatrics. 2012;130:293–8.
4. Kosho T, Kuniba H, Tanikawa Y, Hashimoto Y, Sakurai H. Natural history and parental experience of children with trisomy 18 based on a questionnaire given to a Japanese trisomy 18 parental support group. Am J Med Genet A. 2013;161A:1531–42.
5. Baty BJ, Jorde LB, Blackburn BL, Carey JC. Natural history of trisomy 18 and trisomy 13: II. Psychomotor development. Am J Med Genet. 1994;49:189–94.
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