“We want to do everything”: how parents represent their experiences with maternal–fetal surgery online
Author:
Publisher
Springer Science and Business Media LLC
Subject
Obstetrics and Gynaecology,Pediatrics, Perinatology, and Child Health
Link
http://www.nature.com/articles/s41372-017-0040-4.pdf
Reference39 articles.
1. Hui L, Bianchi DW. Recent advances in the prenatal interrogation of the human fetal genome. Trends Genet. 2013;29:84–91.
2. Griffiths PD, Bradburn M, Campbell MJ, Cooper CL, Graham R, Jarvis D, et al. Use of MRI in the diagnosis of fetal brain abnormalities in utero (MERIDIAN): a multicentre, prospective cohort study. Lancet. 2017;389:538–46.
3. Adzick NS, Thom EA, Spong CY, Brock JW III, Burrows PK, Johnson MP, et al. A randomized trial of prenatal versus postnatal repair of myelomeningocele. New Engl J Med. 2011;364:993–1004.
4. Chescheir NC. Maternal–fetal surgery: where are we and how did we get here? Obstet & Gynecol. 2009;113:717–31.
5. Harrison MR. Fetal surgery: trials, tribulations, and turf. J Pediatr Surg. 2003;38:275–82.
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1. “We All Want to Be Able to Tell You Something Hopeful”: Clinicians’ Experiences Providing Maternal-Fetal Surgery Counseling;Fetal Diagnosis and Therapy;2023
2. Parent Decision-Making With Fetal Surgery for Myelomeningocele;Journal of Pediatric Surgical Nursing;2022-12-27
3. Resuscitation decisions in fetal myelomeningocele repair should center on parents’ values: a counter analysis;Journal of Perinatology;2022-04-07
4. Consents (and Contents) Under Pressure: Maintaining Space for Moral Engagement in Research Protocols;The American Journal of Bioethics;2022-03-04
5. Factors impacting surgical decision making between prenatal and postnatal repair for myelomeningocele;Prenatal Diagnosis;2021-12-20
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