It is a marathon rather than a sprint: an initial exploration of unmet needs and support preferences of caregivers of children with SCI-Reference-Cited by-同舟云学术

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It is a marathon rather than a sprint: an initial exploration of unmet needs and support preferences of caregivers of children with SCI

Published:2017-11-30 Issue:3 Volume:56 Page:284-294
ISSN:1362-4393
Container-title:Spinal Cord
language:en
Short-container-title:Spinal Cord

Author:

Ryerson Espino Susan L.,Kelly Erin H.,Rivelli Anne,Zebracki Kathy,Vogel Lawrence C.

Publisher

Springer Science and Business Media LLC

Subject

Clinical Neurology,Neurology,General Medicine

Link

http://www.nature.com/articles/s41393-017-0022-6.pdf

Reference58 articles.

1. Eastwood E, Hagglund K, Ragnarsson K, Gordon W, Marino R. Medical rehabilitation length of stay and outcomes for persons with traumatic spinal cord injury—1990–1997. Arch Phys Med Rehabil. 1999;80:1457–63. doi: 10.1016/S0003-9993(99)90258-7.

2. Cousino M, Hazen R. Parenting stress among caregivers of children with chronic illness: a systematic review. J Pediatr Psychol. 2013;38:809–28. https://doi.org/10.1093/jpepsy/jst049 .

3. Kelly E, Riordan A, Zebracki K, Thorpe S, Vogel L. Relationships between caregiver characteristics and health-related QOL among youth with spinal cord injury. Top Spinal Cord Inj Rehabil. 2016;22:149–57. https://doi.org/10.1310/sci2016-00012 .

4. Akhtar M, Kennedy P, Webster G, Graham A. What about us? Children’s experiences of living with a sibling with spinal cord injury. J Pediatr Rehabil Med. 2012;5:301–13. https://doi.org/10.3233/PRM-2012-00226 .

5. Elliott T, Shewchuk R. Recognizing the family caregiver: integral and formal members of the rehabilitation process. J Vocat Rehabil. 1998;10:123–32. https://doi.org/10.3233/JVR-1998-10206 .

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1. Quality of life of caregivers of children with visual impairment: A qualitative approach;Research in Developmental Disabilities;2023-07

2. The voice of caregivers of children and adolescents with spinal cord injuries: A scoping review;The Journal of Spinal Cord Medicine;2023-02-06

3. Lived experiences of caregivers and survivors of paediatric spinal cord injury: A scoping review of qualitative studies;The Journal of Spinal Cord Medicine;2023-01-09

4. Coping, Social Support, and Caregiver Well-Being With Families Living With SCI: A Mixed Methods Study;Topics in Spinal Cord Injury Rehabilitation;2022-01-01

5. Professional home care and the objective care burden for family caregivers of persons with spinal cord injury: Cross sectional survey;International Journal of Nursing Studies Advances;2021-11

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