1. Carman KL, Dardess P, Maurer M, Sofaer S, Adams K, Bechtel C, et al. Patient and family engagement: a framework for understanding the elements and developing interventions and policies. Health Aff. 2013;32:223–31.
2. Meissner P, Cottler LB, Eder MM, Michener JL. Engagement science: the core of dissemination, implementation, and translational research science. J Clin Transl Sci 2020;4:216–8.
3. Key KD, Furr-Holden D, Lewis EY, Cunningham R, Zimmerman MA, Johnson-Lawrence V, et al. The continuum of community engagement in research: a roadmap for understanding and assessing progress. Prog Community Health Partnersh. 2019;13:427–34.
4. Center for Drug Evaluation and Research; Center for Biologics Evaluation and Research (US). Patient-focused drug development: collecting comprehensive and representative input—guidance for industry, food and drug administration staff, and other stakeholders. Silver Spring (MD): Center for Drug Evaluation and Research (US); 2020, p. 34. Report No. FDA-2018-D-1893.
5. Andrews D, Fong G, Li L, Mathews M, Russell D, Angus D, et al. Guide to knowledge translation planning at CIHR: integrated and end-of-grant approaches. Canadian Institutes of Health Research; 2012. p. 34. https://cihr-irsc.gc.ca/e/45321.html.