Advance care planning in Parkinson’s disease: ethical challenges and future directions

Author:

Sokol Leonard L.ORCID,Young Michael J.,Paparian Jack,Kluger Benzi M.,Lum Hillary D.,Besbris Jessica,Kramer Neha M.,Lang Anthony E.,Espay Alberto J.,Dubaz Ornella M.ORCID,Miyasaki Janis M.,Matlock Daniel D.,Simuni Tanya,Cerf Moran

Abstract

AbstractRecent discoveries support the principle that palliative care may improve the quality of life of patients with Parkinson’s disease and those who care for them. Advance care planning, a component of palliative care, provides a vehicle through which patients, families, and clinicians can collaborate to identify values, goals, and preferences early, as well as throughout the disease trajectory, to facilitate care concordant with patient wishes. While research on this topic is abundant in other life-limiting disorders, particularly in oncology, there is a paucity of data in Parkinson’s disease and related neurological disorders. We review and critically evaluate current practices on advance care planning through the analyses of three bioethical challenges pertinent to Parkinson’s disease and propose recommendations for each.

Publisher

Springer Science and Business Media LLC

Subject

Cellular and Molecular Neuroscience,Neurology (clinical),Neurology

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